Main telephone number:
020 8401 3000

Sickle cell and thalassaemia

 

The service provides care for those affected by sickle cell disease and thalassaemia including patients, carers and the wider community.  The service is fully integrated and aims to provide high quality consistent patient care when and where it is needed with a dedicated Croydon Sickle Cell Centre for patients.

 

Treatment

Network and peer review

How to refer

Contact information

 


 

Treatment

The team works to help patients, carers and clinical staff help those with sickle cell and thalassaemia effectively.  Patients are seen by the same specialist nurses who work closely with haematology consultants within hospital and community settings to ensure a well-managed continuity of care.

Specialist nurses review and advise clinicians on inpatient on hospital wards.  In the community the nurses regularly assess the care and treatment plans of patients in various settings, including outpatient clinics, home visits and at the dedicated Croydon Sickle Cell Centre.

The team also offers the following disease management activities:

  • Clinical procedures
  • Blood tests
  • Venesection
  • Blood transfusions
  • Manual exchange transfusions
  • Day and evening outpatient appointments
  • Support and advice clinical staff in Croydon, and other hospitals
  • Workplace teaching for clinical staff and formal teaching sessions
  • Education and support for patients, families, carers, and local support group
  • Liaise and support with other agencies to help patients to reach their full potential and maximise health outcomes
  • Teaching sessions for public, local community groups

Screening

The service offers the following types of screening:

  • Haemoglobin disorder
  • Opportunistic
  • Pre-conception
  • Antenatal genetic – pregnant women and their partners as part of the National Screening Programme

Counselling

The team offers counselling for those with the disorder, carriers of a haemoglobin variant, women and their partners identified through antenatal screening programme, parents of babies identified through the Newborn Screening Programme, and affected individuals new to the area.

 


 

Network and peer review

South Thames Sickle and Thalassemia Network

The Trust belongs to the South Thames Sickle and Thalassemia Network.  Through this network patients can access specialist expertise, and highly specialised treatments when required. 

The network includes the following trusts:

  • King’s College Hospital NHS Foundation Trust
  • Guy’s & St Thomas’ NHS Foundation Trust
  • Lewisham Healthcare NHS Trust
  • South London Healthcare NHS Trust
  • Dartford and Gravesham NHS Trust
  • Medway NHS Foundation Trust
  • Brighton and Sussex University Hospitals NHS Trust

Croydon works closely with Kings’ College Hospital to give Croydon patients access to monthly transcranial Doppler (TCD) clinics to identify children at risk of having stroke and so take preventative actions.

Peer review

The service has received consistent highly rated peer reviews.  Following a visit organised by the West Midland Quality Review Service the team received praise from assessors:

“The haemoglobinopathy team at Croydon was a dedicated, enthusiastic and cohesive team providing a good service overall, with some areas of exemplary practice “             

Full reports can be viewed at www.wmqrs.nhs.uk. The next service peer review is scheduled for 2015.         

 


 

How to refer

Patients can self-refer.

GPs should contact the service directly.

 


 

Contact information

Croydon Sickle Cell and Thalassaemia Centre

316-320 Whitehorse Road

Croydon

Surrey

CR0 2LE

 

Tel: 020 8251 7246 / 7247

Answerphone service: 020 8251 7229

Local patient support group: 020 8251 7259

 

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